A mother’s love for her child

Dayana was born in January of 2009. Since the first day we noticed there was something wrong with her but after the first pediatrician checkup she was sent home with us.

We have 4 more kids so for us it was obvious that she was different, she refused to eat and cried day and night.

The first five years she lived pretty much admitted to different hospitals, no one could figure out what was wrong with her and simply labeled her condition as “failure to thrive” we knew she experienced severe pain, vomiting and had food aversion, in an effort to have her stomach working she had Pyloroplasty surgery which did not help at all, doctors were puzzled and had no choice but to place a central line in her so we could feed her with TPN when she was three years old.

Two years later she still did not have a diagnosis and was getting sicker every day so her medical team suggested to send her to another hospital to have another team working with her. We ended up at Mattel’s UCLA in Westwood California where she was admitted for three months. By then her untreated inflammation took a change for the worse and developed HLH (Hemophagocytic Lymphohistiocytosis).

Thanks  to God, many people praying and her amazing team of doctors, she became a survivor and by then a long list of conditions started showing up some of them included:

  • SOJIA (Systemic-onset juvenile idiopathic arthritis)
  • ARF (Acute rheumatic fever)
  • Noonan Syndrome
  • Autonomic attacks
  • HCM (Hypertrophic cardiomyopathy)
  • MVP (Mitral valve prolapse)
  • DIC (Disseminated intravascular coagulation)

Having a diagnosis was a great relief. We started learning how to help Dayana and understand more what she experiences when she has screaming pain episodes.  Unfortunately her condition is so unpredictable and confusing that when we think that we are learning it changes and she faces a new monster. She had chronic vomiting which means she threw up two to three times daily but by the end of 2016 she developed cyclic vomiting and had episodes every two weeks where she would throw up nonstop up to fifty times in a few hours until she was admitted to the hospital.

Some help from a friend

By the end of January 2018 her episodes got closer and she was admitted twice within one week.

Along the way we had met our dear teacher friend Deirdre (better known as Mrs. Selby). She had our son Miguel as her student and we had discussed Dayana’s condition with her. Mrs. Selby always seemed concerned about our girl’s health. She is compassionate and caring and I felt understood by her.

I had also been told about her son Sean and the healing gift he possesses.

I personally never had worked with healers, but in my heart I truly believe that we are moved by faith and prayer, and good vibes and energy around a sick person will definitely make a difference.

One day at the beginning of February Mrs. Selby asked me to come see her before school. The first thing I noticed when I walked in was that she was very excited. She handed me a pink crystal (that now I know is a Rose Crystal) and she explained that she wanted to help Dayana, but in order to have Sean helping her she had to accept it and she is only a young girl, does not understand what is happening.

I remember I felt chills all over and told her I would accept it on her behalf. At that point I was overwhelmed and emotionally drained, countless sleepless nights and stress of seeing our daughter vomiting and screaming in pain were definitely taking a toll in our whole family.

I took the crystal, thinking that if hope had a shape then today I had hope in a crystal. When you think that you are losing faith you grasp whatever God puts in your way and Sean and Mrs. Selby had filled this small crystal with energy and love especially for Dayana.

Improving health

I have to say that there is no such thing as magic pill or magic crystal in this case.  As Mrs. Selby has said, Dayana has a purpose that she must fulfill and sometimes that is out of our hands for changing it, but we did notice the beginnings of a very significant change in her health.

She is crying less, her episodes are shorter and the nausea is still there but there is no denial that ever since Dayana had the first Crystal she had not been admitted to the hospital at all, she went from being admitted twice in a week to zero admissions in eight weeks.

We discussed this with my husband and both agreed that whatever the crystals are doing is working, she is currently having a team of doctors working with her but she carries her crystals everywhere. We are learning along the way and as I mentioned before, the crystals might not be a cure but I am sure the difference they are making is reducing her suffering significantly so we take it from there.

Thank you Sean and Mrs. Selby, you guys are simply amazing!